This is Catherine!  She lives in the United Kingdom with her mom and brother.  She will be turning six very soon. She is also the most beautiful fairy you have ever seen!   Her geneticist has not made a diagnosis yet, but she is leaning toward Pierpont Syndrome as a diagnosis.    Photos of OUR KIDS.  We hope to get more photos on this site, please contact us!

 

 

 

 

 

 

 

 

This is Makenna. (Apparently having another 'bad hair day').  She lives in the USA, Nebraska, with her mom and dad. She turned 5 this month Sept, 08.  Makenna got a diagnosis of Pierpont in July of 2007.

 

 

 

 

 

 

 

 

 

This is Daan!  He lives in the Netherlands and is 6 years old.  Daan was diagnosed with Pierpont Syndrome in March 2004.

 

This is William!  He lives in England with his mom, dad and older brother.  William turned 3 this month (Sept. '08).   His dad posted on MakingContact.org , (28 Dec 2007) and is to credit for getting all this started, and keeping it going. 

 

 

PierpontSyndrome