Some places on the WWW we like:

http://www.pukveron.kijkonzepeuter.nl/babysite/welkom.php  (Daan's site about her daughter Puk who is unfortunately still undiagnosed)

http://whall.weebly.com/  (Matt’s blog about his son who has been diagnosed with Pierpont Syndrome)

http://pierpontsyndrome.blogspot.com/  (Clyde’s blog about daughter who has been diagnosed with Pierpont Syndrome)

http://www.nichcy.org/index.html    (disability info)

http://www.disabilityisnatural.com/email/index.htm  (good parent support site, but is “for profit”. There is a lot of great free stuff on there but they sell books and seminars. )

http://www.scoliosis.org/  (has a very active forum, with many knowledgeable parents.) Very helpful

http://www.rarechromo.org/html/home.asp  (very informative site on many issues, but not Pierpont Syndrome.)

http://www.makingcontact.org/  (A service of Contact a Family)

http://www.refluxinchildren.com/  (good site by parents for parents on reflux/GERD)

http://www.onlineconversion.com/  (Very helpful, easy to use site: example1 kilogram = 2.204 622 621 8 pound)

http://www3.interscience.wiley.com/cgi-bin/abstract/33150/ABSTRACT?CRETRY=1&SRETRY=0  (Abstract for the 1998 American Journal of Medical Genetics Clinical Report on Pierpont syndrome.)

http://www3.interscience.wiley.com/cgi-bin/abstract/110561440/ABSTRACT?CRETRY=1&SRETRY=0  (Abstract for the 2005 American Journal of Medical Genetics Clinical report on Pierpont syndrome.)

http://www.wrightslaw.com/  (disability/legal info, it is a “for profit” site, but with lots of free info)

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